My Great Strides Story
In March 2014, I heard, "Madeline has Cystic Fibrosis" for the first time. She was only 11 days old, but I had spent 10 days trying to figure out what was wrong. I was tired and struggling with everything that comes with being a new mom and I was constantly taking my sweet baby to the doctor's office, explaining that she was not having bowel movements and had terrible gas.
Madeline's diagnosis was made because of a newborn screener. Screeners are completed on all children, even though most of us don't recognize that they are in the hype of having a new baby. The days, even months, following her diagnosis were hard. My dreams for my child, which were based on the assumption of perfect health, were challenged. I learned lots of dark facts about a scary disease and came to understand that we would have a normal life, but that getting to "normal" was going to look very different and require more work.
Over the last three years, our life has normalized. Madeline's journey with CF has been, for the most part, hopeful. There have been hiccups and frustrations, but through it all, the promise of a cure has been tangible and encouraging. Nonetheless, there are still times when the fear I felt as a new mom creeps in and brings me to tears. Now, my dreams for Madeline usually are much like they were before diagnosis, but the reality of doctors visits and ongoing treatments, as well as insurance struggles and missed time in school or work cloud the fairytales from time to time.
Today, there are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them. I also walk for the mothers of those 30,000 Americans, mothers who struggle every day to maintain hope in the midst of busy schedules and the reality of a difficult disease. I hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.