Thank you for visiting my fund raising page for the CF Foundation. It is because people like you and foundations such as this that are the reason I am here today! Once again my team, Scott’s Lifesavers, and I will be participating in the Great Strides Walk in an effort to raise money for the Cystic Fibrosis Foundation. This is a genetically life-shortening disease that affects 30,000 children and young adults in the US today, with an unfortunate life expectancy of 41 years of age. My hope is that one day soon we will find a cure so that each us of with CF will have the opportunity to live a long and healthy life! Here is a snapshot of a day in the life of 37 year-old Scott Parks…
Cystic Fibrosis affects my lungs and digestive system by causing thick-sticky mucus to fill my air passages and digestive organs. Each morning I wake up and start my day with 4 nebulizing breathing treatments lasting an entire hour. This is followed up with a trip to the gym to work out my lungs and build muscle to help maintain my weight. After these exhausting two hours I come home to chug down a protein shake and get ready for the workday. Throughout the day I take a total of 40 plus pills, most of these when I am eating or snacking. By the time I get home it is almost time for another breathing treatment lasting another hour. Then it’s time for a little rest and relaxation and then off to bed for me. While I am sleeping I am fed another 2200 calories through machine that connects to a GJ-tube in my stomach. This is what my typical day looks like when I am healthy; unfortunately that is not always the case especially the last couple of years. Within the last couple of years I have been admitted to the hospital over 22 times and have been on IV antibiotics totaling throughout the years 16 ½ months. I'm now officially listed for a double lung transplant and have been called 2 times, which resulted in what we call a dry run. Based on the recent frequency I do expect to be transplant in 2019 and look forward to life where I can breath deeply. No this isn't a fix all and comes with many new and different challenges.
Please consider to follow my wife's blog which is cleverly called Breathing Through The Chaos! https://breathingthroughthechaos.com/
We also are selling t-shirts which are bold and in your face to spark greater conversation. Visit https://cystic-fibrosis-warriors.square.site/ to learn more today! Approximatively $15 per shirt sold goes back to CF related nonprofits. I live my life every day with a positive attitude, thankful for each day I’ve had, and with a drive to fight this disease as long as live. I know it’s by God’s strength and protection I am still here today. Please know that each and every dollar donated counts towards the days that I may be able to keep the lungs that God has given me for one more day!!
I thank you in advance for your participation and support in this great foundation!
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.