Layla is our Princess Warrior. She's smart & funny. Loves to sing and dance! She's our little fighter! She is 2 years old and is learning from her older siblings the ABC's, numbers, colors, etc. She loves her big brother and is her older sisters BFF. She suffers from Cystic Fibrosis, commonly known as CF. She has CF, but CF does not define her and she fights it every day to keep it that way.
We want nothing more for her but to find a cure for CF. CF is a genetic disease affecting her entire body, especially her lungs and digestive system. She sets aside about 1 hour a day doing breathing treatments and nebs to help break down the thick mucus that builds up in her body. She takes pills and other medications to help her body absorb nutrients from food and to stay healthy. Layla is currently taking Orkambi and is struggling to keep weight on.
Our friends and family are joining together to fight CF and find a cure. The Cystic Fibrosis Foundation is making a huge difference in extending the quality of life for those with CF through research and ground breaking new medications. The CF foundation is greatly improving Layla's health, on account of advances in medicine and therapies.
Your help is needed now more than ever to ensure that a cure is found sooner - rather than later. We want Layla to live life to the fullest! There are potential life extending drugs that would not be possible without the funding provided by the Cystic Fibrosis Foundation. Help us to continue to take steps towards a cure. To learn more about CF and the CF Foundation, please visit www.cff.org.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.