As many of your may know Chris and my daughter; Audrey Dodd suffers from a disease called Cystic Fibrosis. We first discovered this a few weeks after her birth.We went through a lot of different testings to get a proper diagnosis and understand what it was that we needed to do in order for our little girl to live a long, happy, and healthy life.
We are very blessed that we have the support and help of our family and friends and that we have an amazing supportive medical team that we work with very closely.
With the help of the Cystic Fibrosis foundation over the past few years Audrey has become a happier, healthy, and fully energetic toddler. The foundation has donated medical equipment, paid for medications, and also supported us throughout every route of this journey.
A little bit about CF... "Cystic fibrosis is a life-threatening, genetic disease that causes persistent lung infections and progressively limits the ability to breathe. In people with CF, a defective gene causes a thick, buildup of mucus in the lungs, pancreas and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients."
Just a few of the daily therapies include; airway clearance exercises, inhaled medicines (primarily through a neutralizer), and pancreatic enzyme supplements with every meal or snack.
ALL OF THE RESEARCH FOR CYSTIC FIBROSIS IS FUNDED THROUGH MONEY RAISED FOR THE NON-FOR PROFIT CYSTIC FIBROSIS FOUNDATION. The government will not provide research funding because they do not believe enough people suffer from the disease to fund research. The current life- expectancy for someone with CF is from their mid- to late 30's. Which has jumped dramatically in the last decade or so. In the 60's the life expectancy was age 5! Thank you to the Cystic Fibrosis Foundation people with CF are living longer healthier lives.
On May 19th the is a walk called Great Strides. All proceeds go towards research for the CF foundation. Anything that you can do to help is greatly appreciated. You can sign up for our team and walk the three mile walk at montage mountain to support us, you can sign up as a cyber walker and walk in spirit with us. You can make a donation as small as 1$ .. or even just share this post!! Our team name is Audrey's Cure!
(All donations are 100% tax deductible) Thank you all for taking your time reading this post and god bless!
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.