Our Great Strides Story
Cole's Crusaders are back for another year.
Many of you have watched Cole grow over the last 15 yrs. It is hard to believe he is a teenager. It has been a long road and not always easy but here we are. Thanks to many advances in CF research, Cole is a thriving young man.
What a year! Cole made JV Soccer and Basketball, and this year varsity Track. Not bad for a kid with CF! He is in many ways a “Normal” teenager, and has never looked so healthy and alive! This past fall the FDA approved the study drug, Orkambi, that Cole has been on for almost 3 yrs. This new combination drug targets the mutated salt channel that causes the symptoms of Cystic Fibrosis...Can you imagine, fix the mutation fix the disease!…Cole feels great and very optimistic. He told a faculty member at school recently that he has real hope, and can start to plan for the future. Paul and I always had hope, but we weren't sure if a cure would find it in Coles lifetime, but the technology is almost there. This year was a real reminder of how important raising money for the CF foundation is.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people, like Cole, living with cystic fibrosis.
Will you join me? Sunday May 22th, 11 am.
Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event Come walk with us or become virtual virtual walker if you can't make the event.
Please support my family and Cole!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Tara & Paul Halvax
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