James was diagnosed with Cystic Fibrosis at 6 weeks old. CF is a genetic disorder that affects the lungs and pancreas. James does three breathing treatment sessions, and chest physiotherapy each day to help break up the thick, sticky mucous in his lungs. Plus, he takes pancreatic enzymes with each meal and snack to digest his food. This year James began a breakthrough drug, Orkambi (a CFTR modulator), which helps to restore function to the underlying cause of CF. Currently, the median life expectancy for a CF patient is 41 years old.
However, amazing research is being done to develop lifesaving drugs and treatments, and to ultimately find a cure for CF! The future for CF patients is promising with the development of drugs such as Symdeko (2018), Orkambi (2015) and Kalydeco (2012), as well as brand new technologies in lung transplantation. But…there is still so much more work to be done.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.