Our Great Strides Story
Bowen was diagnosed with Cystic Fibrosis when he was just 3 weeks old from the newborn screening. He has 2 mutations of the Delta F508 gene, the most common mutation. It is not known exactly how this will impact Bowen's life as he grows. Currently, Bowen is doing 3 nebulized breathing treatments per day along with 40 minutes spent using his therapy vest. He also takes 25 pills (enzymes) broken down into apple sauce so that his body will absorb nutrients as it should. Even with all this extra junk Bowen is still a happy and thriving 2 year old little boy :) He is a true joy to all who meet him. We have had the privilege of attending many CF events and with each one we are filled with just a bit more HOPE for what his future could look like.
Having a child with a life threatening disease is terrifying but there is truly so much work being done to help change the face of this disease. With help from amazing people like YOU, the Cystic Fibrosis Foundation is able to fund the research we need to find our CURE!
Please consider making a donation or even better, join our team! You can even choose to virtually walk if the 5K is not for you!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for all of them.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Thank you from the bottom of our hearts,
Brian, Leesa, Greyson and Bowen