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Susan's Page

Dallas 2018

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Raised: $19,027.59

Goal: $20,000.00

My Great Strides Story

  • Help Eva Give CF the Boot!
  • Help Eva Give CF the Boot
  • Play Video
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Eva is one of approximately 30,000 Americans living with cystic fibrosis.  Although only 7 years old, she has already felt the long lasting effects of damaging lung infections and difficulty digesting food.  She takes up to 46 doses of medicine a day and needs to eat 1.5-2 times the amount of food of a typical 7 year old to help her absorb all that she needs to thrive.  Despite this plus 1-2 hours of breathing treatments a day, she lives a very full life playing with her friends & the best brother she could ever have, learning at school & church, and enjoying every moment she can.  Her laughter is infectious and her smile a gift.

Because of the efforts of the CFF, there is medication to treat the underlying cause of CF for those with her genetic defect, but for now we and our medical team have decided to stay the course. This treatment is not without a cost (side effects, medication interactions &  and financial)!  We have learned of so much that scientists are doing combining this drug with others, as well as trying completely different approaches.  THE CF FOUNDATION FUNDS MOST OF THIS RESEARCH.  There is no federal government funding for CF, so your donation makes all of this possible.  

We will host our 7th annual "Give CF the Boot" music show to help raise awareness & money for this valuable cause on  April 28 from 2-5:30 PM at Love & War in TX, Plano, with the Darryl Lee Rush Band, Lost Immigrants, & Buffalo Ruckus!  Fun family activities, great food, photo van, LIVE and silent auction/ Lasso the Loot prizes, & more.   

[LIVE NOW: Purchase tickets or bid on auction items at www.benefitbidding.com/givecftheboot]

May 12, 2018 is the Great Strides walk, which is a fun, family-friendly event that raises awareness and support for people with CF and their families.  Eva is planning to join us this year, and again and again!  If you'd like to walk with us, click on "Join us" and we'll see you there!

Please support me!

Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.

 

2017 video now uploaded! Enjoy!

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