As infants, Caleb and Logan were diagnosed with Cystic Fibrosis (CF). CF is a life-threatening, genetic disease that causes the body to produce abnormally thick, sticky mucus. CF primarily affects the lungs and digestive systems. It causes persistent lung infections and progressively limits the ability to breathe. Gaining and maintaining a healthy weight is also a challenge because of CF.
Caleb (16) and Logan (15) are courageous as they battle CF on a daily basis. We are very proud of how they keep up with their health care routine while taking on many activities and earning good grades.
The requirements to stay healthy are demanding and time consuming! The boys do at least two breathing treatments every day. They inhale nebulized medication first and then hook up to the Vest airway clearance system. The Vest shakes and vibrates their chests to help dislodge the thick mucus. Many more treatments or antibiotics are needed if they are sick with cough or congestion. They also have to take enzyme capsules with each meal and snack to aid in digestion. Along with special vitamins, they are also on a high fat, high calorie diet.
We are participating in the Great Strides Walk in Rapid City on June 15. As talk and hope for a cure is becoming more realistic, it is more important now than ever to continue our mission to support the CF Foundation. The CF Foundation does not receive any government funding. They are very efficient, more than 90 cents of each dollar raised helps accelerate innovative research and drug development. In fact, Caleb and Logan recently started a new medication called Symdeko, we are hopeful it will be beneficial for them!
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.