Paisley was diagnosed with Cystic Fibrosis (CF) at birth through her newborn screening. This news came as a shock to our family. At 3 months old she was hospitalized at Children’s for 10 days for bronchiolitis and weight loss. Since then we have been extremely fortunate to avoid any other hospital stays. We are very firm on her diet, treatments, medications and frequent medical appointments to keep her as healthy as we can. Her average day consist of a treatment morning and night which involves nebulizers and chest physiotherapy, plus high calorie diet, antibiotics, vitamins and 25+ pills a day to help her digestive track.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me?
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.