Emma is now 21 years old and works as a resident aide at Keystone Place, a senior living community, and is an on-call admin for Edward Jones. She plays the bass in the St. Croix Valley Orchestra. Her health has been fairly stable, but she spent the first week of January in the hospital with pneumonia.
Positive results were announced this March from two ongoing, late-stage clinical trials of the potential VX-445 triple-combination therapy. “These results reaffirm our belief that a triple-combination therapy will bring significant benefit to the CF community, and has the potential to eventually expand modulator therapy to treat the underlying cause of CF for more than 90 percent of people with the disease,” said Michael P. Boyle, M.D., senior vice president of therapeutics development for the Cystic Fibrosis Foundation. “This would be an incredible step towards our goal of ensuring all people with CF have effective treatments and, ultimately, a cure.” We urgently need your continued support. We will not rest until we find a cure. Help us reach our fundraising goal by donating to our Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
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