Hi everyone! It's that time of year again for me to help raise money and awareness for Cystic Fibrosis to support my friend Amy and her family! Her daughter Kyra is now almost 15 years old and works hard everyday to manage life with CF.
There are approximately 30,000 other Americans living with CF, and while improvements continue to be made (thanks to the CFF) in the area of treatments and progress towards a cure, there is still no cure for the majority of children and adults living with CF, including Kyra. So, I'm joining them again this year in raising funds and will continue until a cure is found - as long as it takes!
Here is an update on Kyra:
Kyra's pulmonologist describes CF as a marathon rather than a sprint, and as Kyra gets older, we could not agree more. Like running a marathon, for most of the 26.2 miles Kyra can hold a steady pace on the flat course - taking pills, doing her vest treatments, staying healthy, but then there are the hills and the struggles such as surgeries and missing a lot of school. But, Kyra is a tough kid with a great attitude and sense of humor so we believe that she will continue to run this marathon into her 90's or even 100!
Kyra continues to take about 25 pills/day, and she is continuing to manage the many medications herself. Every Sunday she fills her weekly pill box, and does a great job of remembering to take them. Since the last walk, Kyra has become less compliant with her vest treatments, but with exercise (mainly basketball) she has been able to keep her lung function up and generally, stay quite healthy.
Please join me in my fundraising efforts to honor Kyra and the many others who work hard to manage their CF. Click on the "Done to Sue" button.
Thank you so much for your generous support!!