WE HAVE GREAT NEWS!!
Joshua was selected to participate in a trial drug study for the past 6 months. He was originally given a placebo, but has now been taking the actual drug and we have been able to see remarkable improvements.
Joshua is gaining weight, coughing less, improved his lung function higher that he as had in 4 years. This is exactly why we walk and fund raise. This has been LIFE CHANGING for Joshua. This drug is not FDA approved yet but when it is Madelyn will also be taking it.
This however does NOT mean we can stop walking and raising money for a cure. This drug helps with the symptoms of Cystic Fibrosis but it is NOT a cure. We will walk til a cure is found and CF can stand for CURE FOUND instead of CYSTIC FIBROSIS.
Thank you for your continued support
Karen, Steve, Stephanie, Justine & Nathan Caspers and Tony Hyser