My Great Strides Story
Welcome to our annual Great Strides letter and update on the O'Leary family's battle against cystic fibrosis. We are thankful that we can again report that Casey has had a relatively healthy year. Being able to say this is no small feat, as Casey works hard every day to maintain his health by taking 30 – 40 pills, nebulized medications, two sessions of chest physical therapy, various inhalers, and an aggressive diet. Any of you that have ever had teenagers in your house can appreciate the time and discipline that is involved in piling this effort onto a teenager's already full day. Add to that playing a sport every season, high school classes and a social life and you have one busy 16 year old. We are so proud of him.
Casey does not get to take a day off from his regimen of drugs and therapies that keep him healthy. These medications have been developed by the Cystic Fibrosis Foundation, funded in large part from donations from people like you. Over the years CFF funded research has led to the development of drugs that add years to the lives of CF patients and Casey has been a beneficiary of these drugs. Recently, CFF partnerships with pharmaceutical companies have led to drugs on the market that treat the underlying cause of cystic fibrosis. These drugs work for nearly half of the CF population and will not just add decades to the lives of CF patients, but also vastly improve the quality of those years. But half of the CF population is not enough. These drugs do not work for Casey. His nagging cough is a constant reminder that his lung function is decreasing and will continue to do so until there is a cure. However, we are optimistic that these drugs have opened the doors for future research that will provide a cure for all of those living with Cystic Fibrosis. We need to continue to fund that research. We will not rest until CF stands for Cure Found for ALL people with Cystic Fibrosis.
Our friends and family are participating in the Great Strides Walk on Sunday, May 21, at RockvilleTownCenter. We are asking for your help in funding this life saving research. You can make a donation directly online through the link above or you can send a check made out to the Cystic Fibrosis Foundation to us at 5805 Searl Terrace, Bethesda, Maryland 20816. All are also welcome to join us, just sign up on this page.
Dennis & Jennifer