Dear Friends and Family,
Our annual fundraiser for Cystic Fibrosis (CF) is here again, and we are aiming to raise $10,000 by Saturday, June 1, 2019. Please join us in this effort! Faith is 16 and doing well as she approaches one year on Symdeko, a new combination drug therapy that corrects the defective protein in CF patients. We’ve seen many benefits, but we also look forward to the next drug of its kind, which is expected to provide even greater benefits (and should come out in 2020).
A small population of CF patients has a mutation of the disease that does not benefit from any of these new, potentially life-changing drugs. The Cystic Fibrosis Foundation (CFF) has made it clear that we will not stop fundraising, researching, and providing excellence until ALL patients with CF are provided effective treatment, and ultimately, a cure. “Until it’s done” is the CFF’s new slogan. We couldn’t agree more. Let’s continue to support through team “Have Faith” until it’s done.
Please click on "Donate" right under the picture of Faith.
We thank you for your support financially, and through continued prayer for Faith's life and health. We daily see an answer to that prayer and are very thankful. :)
With love, Jenna, Dan, Faith, Noah, Adam, Caleb, Hope, and Isaac