It's hard to believe but we have been walking to help find a cure for Cystic Fibrosis for 18 years! Many of you have been with us since the beginning and some of you have joined in along the way, every step of the way we have been so appreciative of all the love, support and donations.
In people with CF, a defective gene causes the body to produce unusually thick, sticky mucus which clogs the lungs and leads to life-threatening lung infections, pancreas obstructions, and stops the body from absorb vital nutrients. In addition to these common complications, Megan also lives with CFRD, Cystic Fibrosis Related Diabetes. She is also closely followed for potential complications to her liver, kidneys, GI, and various surgical issues. Her daily life still consists of up to 4 hours of breathing and physical therapy treatments and a multitude of pills and injections. Megan also requires a higher calorie diet and more sleep for her body to recover from constant bacterial infections, she could definately use an extra few hours in her day.
With all that, Megan is following her passion and is attending Montserrat College of Art. She is learning new mediums and exploring all aspects of art and is working on core classes to pursue a future in an art related field. She has been living at home and commuting to school, she is trying to learn a good balance of school, self care, managing her treatments and her studies. There is so much required of her every day and missing out on medical treatments can set her back significantly.
On a positive note, Megan is finally participating in a clinical trial that is expected to mak a positive change in her life. She was very lucky to be randomly selected for the trial and was well enough to qualify. Withouth the financial gains of the Cystic Fibrosis Foundation and the coninued fundrasing this trial would still be years away for Megan, we were in a race against time. Due to the amount of funds available to the Foundation they have been able to invest larger amounts with a variety of companies and have even allowed for the development of multiple products at the same time. This has given the opportunity to potentially treat 95% of the CF populations. The pipeline is full and we are headed in the right direction but we are not done yet.
With the prospect of helping to fund new treatments and ultimately find a cure – please consider supporting our team, “Megan’s Clan”. The Great Strides walk-a-thon for the Cystic Fibrosis Foundation is a national event that continues to provide needed funding for cutting edge research, treatments and supporting CF families.
This year we will be walking on Saturday, May 19, 2017 at the Hermann Youth Center in North Andover. If you would like to participate in the Walk, we invite you to team up with us as part of “Megan’s Clan”.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.