Each year, our team Emily’s Athletes walks 3 miles in the Cystic Fibrosis Great Strides Walk to raise money to support clinical research through the Cystic Fibrosis Foundation. You’re all aware how personal this cause is to us as Emily was diagnosed with CF at birth.
Emily and other CF’ers are dependent on a variety of lifesaving drugs each day. Access to these medicines is due in large part to financial investments made by the Cystic Fibrosis Foundation. The CF Foundation relies heavily on the Great Strides Walk to raise the funds needed for drug development.
In 2019 something groundbreaking will happen when Vertex pharmaceuticals brings to market a genetic modifier that will bring significant disease improvement to nearly 90% of the CF population. This is the biggest development in Emily’s lifetime and has been the subject of our countless prayers. This walk directly funds the progress of Vertex medications and many others!
Would you consider supporting our team this year? There are two ways to support.
1.Donate to our fundraising efforts by clicking on the “donate” button. 2.Join our team and raise funds as a walker. The walk takes place at 10AM on May 18th at the Hermann Youth Center in North Andover. It’s a beautiful 3 mile walk that culminates with free ice cream :) Here is a picture of our great looking team from last year! Just click “join this team”.
Your support means the world to us and so many others. Best, Emily and Jim
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.