Hi, my name is Emily.
I’m 38 years old and I’m extremely thankful for every day and every breath that I take. I was born with Cystic Fibrosis. There are many blessings that come from living with this disease but a life with Cystic Fibrosis also presents countless daily challenges. A ‘healthy day’ for me starts with dozens of pills and hours of treatments and exercise. Then I tackle the ‘normal’ part of my day. I still cough throughout the day. I still struggle to breath. I still go to the doctors a lot and spend time in the hospital. I’ve recently been evaluated at two different centers for a double lung transplant. And I am one of the lucky ones. Too many precious young lives are still lost to this disease. We need a cure.
I’m walking with my team, Emily’s Athletes at the Great Strides walk on May 18th to help in the fight against Cystic Fibrosis.
In February of this year, Vertex Pharmaceuticals released very promising data from their phase 3 clinical trial of a triple therapy combination treatment. This treatment option addresses the root cause of Cystic Fibrosis in about 90% of people living with the disease. This is great news and will improve the quality of life for many people! This treatment will hopefully be on the market by the end of 2019!
The Cystic Fibrosis Foundation invests nearly 90 cents of every dollar donated into research for Cystic Fibrosis therapies like this. I’m extremely thankful for all the medicine I have access to today and for the future drug developments that are going to stop Cystic Fibrosis in its tracks. Would you be willing to support this cause?
If you’d like to support me and thousands of other Cystic Fibrosis warriors, here are two ways you can do so: You can either donate on this page or join team Emily’s Athletes and sign up as a walker. This is a great way to make a difference in someone’s life.
Thank you so much for considering this cause.