I am leaving up the paragraph from last year because it is a good reminder of how everything started. With that said, Pepper has made such amazing progress. We look back on pictures, and her transformation has been unbelievable. We are so thankful to all of our wonderful friends and family as well as our Cystic Fibrosis team at Phoenix Children's Hospital. We absolutely cannot imagine taking this journey without all of you. As of this update (2/10/2017), Pepper is an 11 month old tornado. She is crushing her weight gain goals and we get comments all the time about how healthy she looks. As healthy as she looks (and is), it is a constant battle for her and others with Cystic Fibrosis to stay ahead of the disease. Nicole is an amazing mom and has taken point on most of Pepper's daily treatments. I won't belabor the details in this post, but her daily treatments take upwards of 3 hours when she is showing no symptoms and can be much longer than that if she is showing even the slightest sign of a sniffle. We have had no extended hospital stays (knock on wood) up to this point, but there are so so many others that cannot say the same. This is part of the reason why we are trying to raise funds for the Cystic Fibrosis Foundation. With your help, we are adding to the tomorrows of Pepper and others like her by funding research for better treatments and eventually a cure. Advancements in these areas have been amazing, but progress cannot stop. Please consider joining Team Pepper and donating anything (if you are able) because even the smallest donation can make a huge difference.
Thanks for taking the time to read through this lengthy post. We love you all!
Billy, Nicole, and Pepper
Nicole and I were able to welcome Pepper Estelle Pedace into the world on 3/13/2016, and we could not be happier. Because we were obviously going to be too good of parents, life threw a curveball at us, and doctors told us that Pepper is a special little girl. She has cystic fibrosis, but we are prepared to tackle this head on and with all of the advances in medicine we were fortunate enough to find out at an extremely early age. By finding out so early, we can get her the care that she needs and deserves. Please help out by supporting in any way that you can. Donations will help to fund research, but even if you don't want to donate, just sharing your support means the world. Shoot me an email at email@example.com if you are interested in joining the team and walking.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.