Dear family and friends,
It is time again for us to ask for your help in funding research to fund a cure for Cystic Fibrosis.
As you all know, we do fund raising every year at this time in support of the CFF Great Strides Walk. The walk is scheduled on April 28th this year.
Jennifer is 17 now, and a beautiful and accomplished young woman. Her courage and determination are truly amazing. She pushes herself to achieve excellence in whatever she does
Jennifer continues fighting for survival with her rigorous routine of medications, breathing treatments, and hospital and clinic visits. You would never know how ill she is by looking at her or listening to her optimistic view of life.
Her love is being outdoors, and hunting with her family. She has achieved much fame in her pursuit. In 2018 she set an impossible goal for herself. Knowing that her life would be shortened by Cystic Fibrosis, she was inspired by the Wounded Warriors with whom she hunts. She wanted to have the chance to achieve something spectacular during her life. She asked her parents if she could go sheep hunting. Her parents were shocked by this request!! This is a very challenging goal for any healthy person to achieve, much less someone with only 50% lung function!! However, they told Jen that she could achieve anything she set her mind to do. With reservations and concern about her health, they set about helping her to get into shape and train for this impossible goal!! It was a very difficult and uphill climb, literally, to get into shape physically for this. I have attached a link to a utube video made in Reno in 2018. This is a video of a speech Jennifer made to the Wild Sheep Foundation last year. The speech was made to about 2,000 sheep hunters. Can you imagine a 16-year-old kid giving a keynote speech to a room full of avid hunters? Jennifer received a standing ovation following her speech!
In this speech, Jenny describes the difficulty of her task Since that speech, Jennifer has met her goal of successfully hunting 4 North American Wild Sheep – a Grand Slam!! Additionally, she recently got a fifth sheep in AZ making her achievement a Grand Slam Plus!!
Here is some wonderful news!!
Jennifer was very blessed in late 2018 to become a participant in a drug trial of a new CF medication, which is producing miraculous results. This new trial medication, along with the extraordinary strenuous training Jennifer has undergone has raised her lung function value to 77%. The makers of this drug estimate that it could help 90% of the CF patients!!! The drug will not cure CF, but it will help mitigate the damage caused to CF patients by reducing inflammation and helping them breathe.
It is because of donations from people like you that this drug research is possible. Thank you so much for supporting Jennifer’s cause through the years!! You are helping Jen have more tomorrows.
Please help us raise funds to continue the research. We hope and pray that someday CF will stand for “Cure Found”!!
If you prefer mailing a donation, please endorse the check to CFF, and mail it to:
Sie and Manny Griego
9634N 24th St
Phoenix, AZ 85028