My Great Strides Story
Looking at Grace, you'd never know that she is fighting a devastating disease. She is a typical, energetic 13 year old who loves school, soccer, track, music, and church. What most people can't see is how cystic fibrosis is clogging many of her organs with thick, sticky mucus. Germs get trapped in this mucus leading to lung infections. Her most recent lung infection was in January, and she spent a month on potent oral antibiotics. It takes three months of clean cultures before the bacteria is considered eradicated. She has had one clean culture, and we are currently awaiting her second culture results.
Last year also brought on a new trial. Grace has shown beginning signs of CF related diabetes. We have spent the last nine months adjusting her diet slightly. She just underwent testing to see if anything has changed in her blood sugar levels since last July. We are waiting to see if treatment will be needed or if we will get to wait another year to be rechecked. We are praying for the latter option. If insulin becomes a necessity, Grace and our family will start the next chapter in this on-going drama of CF. I have no doubt that she will be a trooper and adjust to the necessary changes to keep herself healthy if new treatments are needed.
Over the last 12 years, Grace’s team has been raising money to fund research for better medicines and therapies for cystic fibrosis patients. In November of 2016, Grace began taking a medicine called Orakambi. We watched this drug come up through the pipeline since Grace was a little. It targets the disease at a cellular level, versus treating the symptoms. It is not a cure, but it is a monumental advancement in CF therapies. It is projected to slow down the progression of this disease, which is certainly an answered prayer. Scientists continue to work on new drugs that we’re hoping will one day result in a cure. The most recent one in early trials is anticipated to reduce inflammation in the lungs, which will slow down the devastating effects of this disease. We could use your help to continue funding this process. Please consider making a donation to the Cystic Fibrosis Foundation on Grace’s behalf. So many lives will be impacted with your donations!
Grace is an inspiration to everyone. From her contagious personality, to her caring heart, she has made an impact in this world from the moment she was born. Thank you for supporting her throughout this journey.
Don't worry about anything; instead pray about everything. Tell God what you need, and thank Him for all He has done.