Our Great Strides Story
Join TEAM HOPE FOR HARPER and help add tomorrows!
We are back for our 5th Great Strides Walk! I am still amazed at the support we had last year! I hope to see you walking again this year!
Harper has had another great year! We have had to miss out on some things, but in return we have managed to avoid any hospitalizations!
It's hard for people, including myself sometimes, to realize how sick Harper is. She looks and acts like any other active 4 year old! To prevent Harper from getting any sicker or causing any more damage to her lungs, she does several things. As soon as she wakes up she gets her daily doses of vitamins and antibiotics, does her nebulized pulmozyme, and follows with her vest treatment for 30 min. She takes pancreatic enzymes throughout the day with food and does 1 more vest treatment for 30 min before bed. Thats just MAINTENANCE! She has cultured a nasty bug called Psuedomonas aeruginosa twice in the last few months. That means an extra medication nebulized twice a day, for 84 days.
Lives are still cut way to short, but the CFF has made great progress with new drugs and treatments and its because of YOU, our donors! This wouldn't be possible without you. And for that, I have HOPE FOR HARPER!!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
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