Once again, our family is participating in the Cystic Fibrosis Foundations largest national fundraising event “Great Strides: taking steps to CURE Cystic Fibrosis”.
On June 2, 2019, our team “Willy’s Wacky Walkers” will be walking a 5k at Adelphi University in Garden City. At this time, I would like to invite you to come out and walk with us on our team and asking family or friends to join you the more people there are the more awareness there is of our cause.
The reason I am doing this walk is that I am a mother of a 22-year-old son name William who has Cystic Fibrosis (CF). Cystic Fibrosis (CF) is a life - threatening genetic disease. This disease is an orphan disease, which means there is no government funding for research. Research is a vital part of finding a CURE.
With that said, I would like to share something with you. I have the hardest time writing this letter every year, I am a mother not a fundraiser. It really is not easy to write a letter asking for money and support. However, as a mother, I will do anything for my son. So I am writing to you from the bottom of my heart w\a special request………. I am asking you to help my team meet a goal of $2000.00. You can do this by making a generous donation, join our walk team and set a personal goal, recruit a family member or friend to join you, sponsor you or even think about starting there own team.
By walking in Great Strides, you have helped raise the funds needed to accelerate innovative research, drug development, specialized care, and advocacy. We've come so far, but there's still so much work to do.
Personal update William is now 6’1” ½ , 207.4 lbs William was involved in a Phase III, randomized, multi-center, double-blind, placebo-controlled, parallel-group study to examine the safety and efficacy of AeroVanc in the treatment of persistent Methicillin Resistant Staphylococcus Aureus (MRSA) lung infection in patients diagnosed with cystic fibrosis. And none of this would be possible with out your help. William also just got engaged and planning a wedding for 2020.
You may make your check payable to the Cystic Fibrosis Foundation (which is tax deductible). You can also donate online at my home Personal Page URL: (URL Settings) http://fightcf.cff.org/site/TR/GreatStrides/56_Greater_New_York_Long_Island?px=1463190&pg=personal&fr_id=7440
Again, thank you for any support you may lend to this worthy and necessary cause.
“ALONE WE CAN DO SO LITTLE: TOGETHER WE CAN DO SO MUCH”
With much love and abundant gratitude, Vivian & Willy’s Wacky Walkers
Steven, Vivian, William, & Biscuit Paleno
Join My Team Visit CFF website
If you encounter a problem with a link, please visit my Great Strides Home Page at http://www.cff.org/Great_Strides/VivanPaleno! NOTE: If link looks broken, cut and paste ENTIRE link into address bar. If you are presented with a "Find A Walker" page, enter my first and last name and click on "Find Walker." Then click "View Walker" by my name in the results list to go to "My Great Strides Home Page."
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.