My team, Katy’s Krusaders is back and this year we are walking at a new site in Nassau County. The walk will be held on Sunday, June 2nd at Adelphi University in Garden City, NY.
Last year we took a break from raising money because we had a lot going on in our family. After my father passed away in early March 2018, our family was rocked once again with my Aunt Kathy having a life-changing fall. This fall led to months of pain and complications that ultimately led to her untimely death in January of this year. Our family will never be the same again. These two people were such strong, vibrant parts of our every day lives. Going forward day to day, without them, just doesn’t feel real. Mentally and emotionally the past year and a half has been extremely challenging. Fortunately, health wise I have been feeling very good.
I can’t believe it has been four years since my second double lung transplant. My lungs are amazing. I have been skiing many different times, and the thrill of going down the mountains, being able to take in huge, deep breaths, and not needing to stop to catch my breath, is indescribable. My transplanted kidney is in rejection, but I am stable and have very little symptoms. My doctors are hopeful that I can stay stable for a while before a second kidney transplant needs to be discussed. Physically, life is very sweet right now. But as we all know, that can all change in an instant.
Transplants are great. They are needed. Right now it is pretty much the only option to extend your life once you are in end stage CF. But it comes with risks and complications and it is never a guarantee.
This is why we NEED to find a cure for Cystic Fibrosis as soon as humanly possible. I’ve seen way too many friends be denied transplant because they are too sick and others that die waiting for lungs that never come. CF is cruel. It doesn’t discriminate. The only way we can get rid of this horrible disease is to find the cure.
We are getting closer and closer every year. New medications are coming out that are helping to stop the progression of certain mutations but this is not enough. Nothing will be until we can finally say CF stands for CURE FOUND.
Please help me in my efforts to make this a disease of the past.
No donation is too small, every dollar counts!
Thank you so much for your continued support over the years.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.