On Saturday, June 2nd the Condon family plans to walk the annual Great Strides Walk-A-Thon for Cystic Fibrosis. My 31 year-old cousin Bobby faces a daily battle against this deadly disease.
Cystic Fibrosis is a chronic, progressive, genetic disease which affects the pulmonary and gastrointestinal systems. Nearly every CF drug available today was made possible because of Foundation support and the generosity of donors and friends across the country. Your donation ensures that we are able to continue exploring cutting-edge research that could one day lead to a cure. Together we are transforming the faces of this disease from one of despair to one of hope. Through our efforts, the life expectancy of a child with CF has reached a median age of 41.
In July 2015 Bobby was approved to start taking Orkambi which improves lung function and significantly reduces the rate of pulmonary exacerbations, which can lead to frequent hospitalizations and accelerated lung disease. He has had a good result, allowing him to climb the Hill at St. Marteen without being out of breath, the first time in years! He is starting a new study for a new anti-inflammatory drugs that they are hoping will receive FDA approval.
With the science moving forward exponentially, we are at a critical crossroad (literally in a footrace with time) to save precious lives. Your support is appreciated and vital to our success in crossing the finish line. The future of people with CF depends upon continued support from volunteers and donors, and wise investments in science that will allow those with CF to enjoy long, healthy lives, while pursuing their goals and dreams to the fullest. For our CF kids and young adults, “The future is now”
By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Thanks again for all your support it goes a long way!
Rich, Tara & Charlie Condon