He would have turned 50 this December. I would have called him up on the phone and said "Happy Birthday Old Fart!" We would have laughed and then discussed how we are both looking forward to the special celebration. We would have asked how each other's families are doing and then we would have said ok, talk to you later...love you, bye. At least....that is the way I IMAGINE how our conversation would go. That, in fact, is all I have with my brother...an imagination.
We lost him too soon, he was only 10. He had so much more to give to the world, but his illness took him from us. Shawn was born with Cystic Fibrosis in 1969. A time when doctors barely new anything about the disease. It took them 5 months to actually diagnosis what was wrong and they told my parents he will only live to 2 years old. Thanks to my mom's strength and to my brother's courage and a will to live, they proved the doctors wrong.
In honor and memory of strength and courage, I walk every year (17 years to be exact) to raise money to help find a cure for this disease. Doctors and researchers have come a long way and thankfully today those born with Cystic Fibrosis have a much longer life span, unfortunately not long enough.
We need to keep pushing until a CURE is found!
On Sunday, June 2nd my family and I will be walking in the Cystic Fibrosis Great Strides Walk at Adelphi University. Please support me and my family in raising money for this very special event.