There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
I was diagnosed With Cystic fibrosis when I was just 6 weeks old. When I was a toddler the doctors told my parents that I would be lucky to see my 15th birthday. These past 44 years have been filled with a lot happy/sad moments, a million hospitalizations, dr visits, and home IV antibiotics. As the years went on I found my health started to deteriorate rapidly. I knew a transplant was the only way to save my life. Over 5 years ago I underwent a double Lung transplant at Duke Hospital in North Carolina. I am forever grateful to the special gift I received from my donor. Without the selfless act of my donor and his or her family I wouldn't be here today.
Growing up I always heard from people " you look great,I would never know you were sick looking from the outside"! CF is a disease where All the damage takes place on the inside, attacking many of our major organs, blocking them with thick sticky mucus , causing unrelenting infections requiring IV antibiotics , pills,oxygen,insulin, √‚¬†enzymes to help digest food, nebulizers and chest physical therapy several times a day. We also have a hard time gaining weight and maintaining weight. A lot of CF patients also develop Diabetes due to the prolonged use of steroids (prednisone).√‚¬†
There have been so many breakthroughs since I was √‚¬†child. Words can't even describe how thrilled I am for the √‚¬†CF community who can benefit from all the new drugs in the pipeline. But there is still so much more to be done. We still have not found a CURE for this deadly disease. I have lost so many good friends to this illness . No one should have to endure that loss and pain. It is very hard when a parent loses a child. It's a pain like no other.
So let's joins forces and make a change . It would mean the world to me and my fellow "cysters and fibros" if you could√‚¬†Help me reach my fundraising goal by donating to my great√‚¬†Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible. Every penny counts and the lives you would help save is unimaginable. √‚¬†I would also like to remind those who may not already be an Organ Donor to get out there and register. You can save 8 lives -it's a gift like no other. Thank you all so much for all the love and support throughout my journey. Much love and hope to see you all the day of the walk. #cfwarrior #organdonation #greatstrides2019 #curecf #breatheasy #livelovelife