My amazing niece Emily does not let her cystic fibrosis stop her from doing what she loves. Going to kindergarten, dancing, playing soccer, and laughing with her friends are all parts of her lively five-year-old day. But Emily has to do quite a bit to stay healthy every day to stay healthy and strong. This includes 60-90 minutes of daily respiratory therapy, lots of antibiotics, and over 200 enzyme pills weekly to help her body get the nutrition it needs. In short, Emily is a fighter!
One of my brother Jon and his wife Laura's (along with our whole family's) biggest dreams is the ongoing advancement of new medications to help people with CF live longer and stronger. The Cystic Fibrosis Foundation has single-handedly funded all of the largest medical advancements in recent history for CF. This includes drugs to help manage daily symptoms, as well as future medicines and technologies designed to address the genetic cause of the disease.
Emily and our family will be walking in a Great Strides walk on May 18 in Indianapolis and since I cannot be there, I will be walking in the Great Strides Walk in Manhattan on May 19! If you would like to donate to this cause or join me on the walk, my family would be so grateful. Thank you from myself and my whole family!
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.