Hello, and welcome to the Salty Cysters NYC team page! Over 30,000 Americans are living with Cystic Fibrosis. How can we help?
This will be the first year a Salty Cysters team will be walking in New York City! Though it's this specific team's innagural walk, the Salty Cysters - aka, Tiff and Lea - have been advocating for a Cystic Fibrosis cure for years.
After becoming friends over twitter, Lea and Tiff decided to put their efforts together to create Salty Cysters. Salty Cysters has many forms, including a Facebook page, an Instagram account, and a website, all of which focus on sharing the daily life experiences of living with CF. Tiff has shared her transplant journey since the beginning, taking everyone through the high highs and the low lows of being the reciever of a double lung transplant. As Tiff was adjusting to her new lungs and all the changes that came with them, Lea posted about her every day life with Cystic Fibrosis, including everything from travel to work to relationships.
In the fall of 2018, Lea caught an infection she just couldn't shake. She passed away on December 13th, 2018. But even in death, Lea has been unstoppable. The Salty Cysters have touched so many lives, and it seems that everyone who was affected by Lea's work has mobilized in her honor. Her unflinching honesty about living with Cystic Fibrosis was a gift. She celebrated when things were going well. She shared her frustrations when treatments didn't go as planned. She was dedicated to sharing every experience, allowing others to learn what it was like to live with a chronic illness and giving space to chronically ill people to relate and share their experiences. And in being unapologetically herself, she gave those around her permission to be their honest selves, which was one of her greatest gifts of all.
Tiff has been working tirelessly to have Salty Cysters teams walking in as many Great Strides walks this year as possible! We're proud to aid her in that journey and walk for Lea in Manhattan this coming May. And the Cystic Fibrosis Foundation is a four star charity on Charity Navigator, with an exceptional amount of funds going right back into their research and care programs, so you know your donations will be going to the right places! When you donate or walk with us, you're contributing directly to a better future for children and adults with Cystic Fibrosis.
Can't wait to keep you updated on all of our progress!
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.