Our niece Abby is 12, and she was diagnosed with cystic fibrosis at less than a month old.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for Abby and we walk for them and hope you will support us in my efforts.
There is no cure for CF. Abby works really hard to stay healthy, and it's not easy for her. She has breathing treatments with her percussion vest for at least an hour and a half every day, uses a feeding tube every night (or more often if not eating), takes 30 enzyme pills to help her digest her food, and takes various other medications to deal with all of the other havoc that CF wreaks on her body, including her sinuses, stomach, and liver. Before anyone else sees her in the morning, she's already spent at least an hour taking care of her medical needs. This is every single day.
When the CF Foundation was founded, life expectancy for children with CF was only five years old. Thanks to donors and the fact that 90% of all donations given to the CF Foundation go towards research, the median life expectancy was recently raised from 37 to 40! Your support has already made a huge difference in just a few short years. But CF is mean and heartless and often doesn't play fair. There are still children and young adults that are taken from us well before that age. Our Abby is at risk of that.
Abby lives in Los Angeles, and we frequently feel helpless that we can’t do more to help. We give charitably to the Cystic Fibrosis Foundation and participate in Great Strides because sometimes that is all we CAN do to help her.
You can help by donating to our Great Strides walk. It's easy and it's safe.
Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
From our whole family, thank you for your support!
Mindy & John