"A salty baby is bewitched, and will surely die" were some of the first words we ever read about Cystic Fibrosis.
At just 8 days, Callie (our youngest of 3) was diagnosed. In her 4.5 short years, Callie has endured more than most do in a lifetime.
1900+ HOURS hooked to a vest doing airway clearance 1000+ HOURS with a nebulizer over her face for breathing treatments 27,000+ Pills have been swallowed
And her GTUBE pumps liquid in her tummy all day long! #livingthatGlife
In 1950 the age expectancy was only 2, but after 60 years of funding, research, and discoveries someone with CF has an average lifespan of 38, but with a time consuming daily therapy regimen, countless hospital stays, surgeries, and ultimately transplant or lung failure, it certainly isn't an easy journey to endure.
Would you be willing to walk beside us, donate, share with businesses & on social media to create more awareness for Cystic Fibrosis: no act great or small goes unnoticed. 100% of the donations go directly to the Cystic Fibrosis Foundation funding research for a cure!
And to each of you, we thank you. We cannot fight this alone. Thank you for taking a little part of this heavy weight and throwing it on your backs along side us. YOU are the lemonade.
With every candle blown out, atop every birthday cake our little Callie gets, we honor you: for giving us more years to love her, and BEING OUR HOPE!
With gratitude and a full heart,
Colby, Angie, Zach, Tess, and Callie
You can also purchase a fundraising shirt at www.LifeGaveLemons.com and use code: CURECF at checkout for free shipping and an extra THANK YOU gift!
We will be rocking a variety of 'Life Gave Lemons' tees at the upcoming walk!
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.