Team Tubes

Cincinnati 2017

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Fundraising Progress

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Raised: $16,429.49

Goal: $10,000.00

Team Achievements

Our Great Strides Story

AJ and Carson Rose
AJ and Carson Rose

A lot has changed since the last great strides for Team Tubes.

First, and most obvious, is that Carson Rose has joined our team! She was born on 9 January and has completed our family in a way we could have never imagined!

Secondly, is the development of Cystic Fibrosis within AJ.  AJ has a very rare, originally-believed more mild CF mutation.  However, in December of 2016 AJ was hospitalized due to a CF exacerbation in her lungs.  She had a bronchoscopy performed showing a more severe disease progression than we expected. 

AJ's diagnosis has changed from CRMS (mild CF) to Cystic Fibrosis.  This also affects Carson Rose who carries the same mutations as AJ.

This has changed Team Tubes quite a bit.  We are devoted to working hard to keep our daughters healthy.  This means at least 4 treatments a day: 2 for AJ and 2 for Carson Rose.  This means that, for at least two hours a day, our family is actively fighting the progression of this disease within our daughters.  When they're sick - that time doubles.  

The Cystic Fibrosis Foundation funds research specific for Cystic Fibrosis.  Some of their previous research currently benefits our daughters in the forms of The Vest and Pulmozyme (just to name a few). Any amount you can donate today could directly help our daughters outlive their current life expectancy of 40 years old. From the bottom of our hearts, thank you for your help, prayers, support and donations.  We promise to never stop fighting for our little girls!

Team Roster

Team Tubes - Join Team Raised
Super Strider Lauryn Tubesing $11,457.97
Eden Callahan $31.00
Lucas Callahan $0.00
Sean Callahan $0.00
T-Shirt Kirsten Chenery $125.00
Michael Chenery $0.00
Super Strider Alvin Doughty $1,700.00
T-Shirt Christine Dufault $470.52
Kelly Heekin $0.00
Mary Jo Heekin $50.00
Steve Heekin $50.00
Allison James $0.00
T-Shirt Brandon James $355.00
Emily James $0.00
Super Strider Lucas James $725.00
Melissa James $0.00
Erica Linder-Callahan $50.00
Rose Nelsen $55.00
James Obert $0.00
Mary Obert $0.00
T-Shirt Ali Rose $160.00
Adam Thompson $0.00
T-Shirt Jacque Trujillo $120.00
Trevor Trujillo $0.00
Brad Tubesing $0.00
Super Strider Laura Tubesing $1,080.00
Denotes a Team Leader