Thank you for joining Victoria, Caio and Lucas in our fight against cystic fibrosis – together with you, we can add more tomorrows for Lucas.
On September 15, 2017 Caio and I became parents to an exceptional, loving, creative, caring baby boy, Lucas. When we learned that Lucas had cystic fibrosis a few weeks later, we made a decision we were going to fight hard to make sure Lucas has a long and wonderful life, full of the same love and joy that he brought into the world.
This meant changing our career plans to keep Lucas out of daycare, adjusting our finances to afford quarterly clinic visits, and pay for the copious amounts of medication that Lucas would be on for the rest of his life.
For Lucas, it means taking serious measures to avoid hospital stays each year, including:
Taking 570 pills per month: Including enzymes before eating any snacks or meals, to stay healthy.
60 minutes of Airway Clearance per day: Starting the day each morning morning, and going to be every night, doing rounds of airway clearance therapy – and every 4 hours when there’s a cold. Lucas wears a vest, connected to a large machine that will shake to help move the mucus out of the lungs. We must travel everywhere with this.
Adjusting plans: It means cancelling plans or leaving parties early when someone is there with a cough or cold symptoms.
Being germ freaks: For an exploring and curious toddler, it means being rigorous about washing hands, eating food that’s been properly washed and clean, wiping down public spaces at airports and parks – and being an advocate for people he is around who don’t have the same standards of cleanliness.
And finally – an average life expectancy of 47: This is the reality Lucas will face every day – it is a number that we refuse to define our son, and it is a number we hope we can keep raising with your help.
Come join us at Great Strides and walk to celebrate the amazing progress made by families, doctors, researchers and scientists – and how we can keep raising this number together. Support TEAM LUCAS by donating or participating in our Great Strides Walk to help Lucas live a long and wonderful life.
FACT: Clinical trials for new drugs and treatments cost approximately $19 million. Your donations and support go straight to the Cystic Fibrosis Foundation, which has a direct partnership with companies, scientists and researchers who are searching for a cure.
Here's How You Can Help
To walk with us at the event: click on the 'Join our Team' button and select 'walker'. From there you can make a donation and/or start your fundraising. Joining our team is free and does not require a donation or fundraising, however, fundraising IS encouraged! The more resources we have for research the better!
Can't attend the walk but still want to support and donate: Click on the 'Join my Team' button and select 'virtual walker'. You guys are our online force who are driving donations in your community and diligently bringing in money. Once you register you will then be given a link that you can share with friends and family. All donations are tax deductible!
Help share Lucas story: Sharing Lucas journey and educating others is one of the most impactful things we can do. We’ve come a long way, but cure is still needed and when you can spread the word by sharing a personal story – it’s more impactful! For ALL walkers and virtual walkers who gather donations from friends, co-workers and family in the amount of $100 or more- you will receive a Great Strides T-shirt!
To Donate: Click on "Donate to Team Lucas" at the top of the page. We are very grateful for your donation and your passion for furthering research for Lucas.
Thank you for the constant prayers, encouraging messages, hugs and thoughts. We know it takes a village. Your support and fundraising dollars are laying a strong foundation of support for Lucas to continue to fight and live a long and wonderful life.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.