Hey Everyone! This team is dedicated to helping raise money, support, and awareness for the Cystic Fibrosis Foundation in honor of our CF fighter, Holly Seay!
A little Cystic Fibrosis knowledge. CF is a chronic and terminal genetic disease that affects all organs of the body. The CFTR gene is defective causing salt to not regulate properly throughout the body. This causes thick sticky mucus to form and clog up all of the body's organs: mostly the lungs, pancrease, and sex organs. In the 1980's life expectancy for a CF patient was less than 20 years old. However, with treatment and medical advances that number keeps getting better and better. The current life expectancy for someone with CF is in the mid-30's.
Holly is in her 23rd year of fighting Cystic Fibrosis. In the past couple of years, her health has taken more hits than can be counted. Her lung function has taken huge drops that she has been unable to ever fully recover from, more hospital admissions than should happen in a lifetime, losing 30 pounds resulting in getting a feeding tube for weight gain, CF-related diabetes issues, requiring home oxygen, pulmonary rehab, and so much more. However, with new gene modified drug developments, her health could finally begin to stabilize, but that won't happen with funding for these medications. All of the funding must come from generous donors, because the Cystic Fibrosis Foundation recieves zero government funding!
Because of this we would love for you to join our team, Holly's Hope! Without your support, the CF Foundation will not have money to continue the research that will be able to prolong her and other CF patient's lives! Together we can make CF stand for Cure Found!
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.