By joining our team and/or making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. We will not rest until all those with cystic fibrosis have a cure. The time is now. Together, we can conquer this disease.
My two-year-old son Saiul was diagnosed with Cystic Fibrosis (CF) on December 9th, 2016, only a month after he was born. By that time, he had lost more than half of his body weight while also growing pseudomonas (bacteria) in his lower lungs. Cystic Fibrosis is a genetic disease that causes lung infection, respiratory failure ,and insufficient pancreatic fuction. It can be life shortening and limits the ability to breathe over time.
Thanks to his CF care team two years later he is thriving in weight gain, and with proper airway clearance and antibiotic inhalation treatments we are managing to keep his lungs open and clear. Saiul is our warrior. He fights with a smile on his face most days but some days are more challenging than others, like others fighting their own CF battle.
There are approximately 30,000 Americans living with cystic fibrosis. They are sons, daughters, moms, dads, sisters, brothers, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. We will not rest until all those with cystic fibrosis have a cure. The time is now. Together, we can conquer this disease.
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF -- join our team today!
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.