There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease.
Dear family and friends,
It's with a heavy, broken heart that I say, "Our beautiful Sarah lost her battle on November 15, 2018. She never gave up. Her body did."
"CF sucks. It's sucked a lifetime of dreams and wishes, plans and adventures from Sarah. The struggle is real, the fight is every day and Sarah was in it."
Each day is hard earned but sometimes there's good news: maintained weight, pft's are up, a new medication approved, and no hospital stay this time. As a parent of a sick child you struggle with feeling helpless, with your beliefs, and with the fear. I would have given my life if it meant Sarah could still be here. Unfortunately it is too late for Sarah but many are still waiting. In here memory, we will never give up on her fight.
You can help with your helpful donation. Any amount can help! Thank you!