My Great Strides Story
Family and friends it is time once again for Team Bryce Bryce Baby to gear up for the Great Strides walk benefiting the Cystic Fibrosis Foundation. As our clever name states we walk in honor of our son, the one and only, Bryce! This will be our 9th year raising funds for the Great Strides campaign. We have high hopes that 2017 will be another successful year for Team BBB.
Big news so please play attention...the Atlanta walk has found a new location for 2017. The walk will take place at Suwanee Town Center Park on Saturday, May 20, 2017. Check in starts at 9:00 am with the walk starting at 10:00 am.
Raising funds is not required to walk; however, it is HIGHLY encouraged. Notice how I put an emphasis on HIGHLY!! The purpose of this walk is not only to bring awareness, but to also raise funds for the Cystic Fibrosis Foundation so they can continue their efforts to find a cure. Bryan and I have set our personal fundraising goal at $5000.00.
The funds raised through Great Strides are definitely making a difference. Look at the success of the medications Kalydeco (G551D) and more recently Orkambi (DDeltaF508). Bryce is fortunate that one of his mutations (G551D) works with Kalydeco. He has been taking this drug since July 2014 and we have seen noticeable improvement in his weight gain and sinuses.
We would love for you to to donate to a cause that is near and dear to our hearts. An even better idea would be to donate, sign up to walk and help us raise funds. The walk is a fun event for all ages and we would love to have you with us. Thank you so much for your continued love, support and prayers over the years. It means the world to us!
Read about Bryce and the rest of the family here: www.thejoneschronicles.com