Most of you know that I have Cystic Fibrosis which is a progressive, genetic disease that causes persistent lung infections limiting the ability to breathe, eventually leading to respiratory failure. Also, CF affects my pancreas making it extremely difficult to absorb the nutrients needed resulting in malnutrition and poor growth.
Myself and the other 30,000 individuals in the United States with this disease live a pretty challenging life. Every day includes 60 minutes of chest physical therapy, multiple nebulized treatments, inhalers, 40+ pills a day, feeding tubes, oxygen, multiple trips to multiple doctors every month, all while still trying to live a normal life.
As of right now there is no cure for CF, although there have been amazing advancements over the years, we still haven’t been able to make CF stand for “Cure Found”.
Please join my team and help me reach my goal on Saturday April 13th at 8am at the Estero Community Park and walk towards a cure!
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.