Luca was born a seemingly healthy happy boy on July 20th, 2018. At 2 weeks old we received the devastating call that our beautiful Luca was suspected of having Cystic Fibrosis and we would need to come down to JH All Children’s Hospital to confirm the diagnosis. Heartbroken, we made the trek down to the hospital and ran some tests to confirm he indeed had CF. It took us a few weeks of tears and researching the web to realize he could in fact live a long life with CF with the help of treatments and medicine. Instead of sulking in our sadness, we have decided to turn this diagnosis into a positive by raising money and awareness for CF to give Luca and others living with CF the best chance at a happy, long and meaningful life with the help of medicine, treatments and advances in the disease that would not be possible without a foundation like CFF!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. We will not rest until all those with cystic fibrosis have a cure. The time is now. Together, we can conquer this disease.
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF -- join our team today!
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.