A little bit of a background on my precious baby boy RIVER KAEHI LECHUGA. He has been battling CF since he was born. He was diagnosed at 3 months old after countless hospitalizations for pnuemonia. After over 6 doctors trying to MIS-diagnose River with everything from asthma to congestive heart failure (but his heart looked perfectly fine :/). We finally had an amazing doctor come into our little hopital room at the Army hospital at Fort Bliss, Texas and ask.... "may I LICK your son?" And after all that we had been thru I gladly handed River over and said SURE!!! The doc then did River's first sweat chloride test and it came back with a 98% so he repeated the test 2 more times with those results being 99% and 100%. RIVER HAD CYSTIC FIBROSIS... with not only the lung side of this life-long life-threatening disease he also had the pacrease side as well, and I was scared to death but was somewhat relieved to know that the docs had finally found what was going on with my little prince. So after 13 years, tons of hospitalizations, millions of dollars in medicines, drugs and therapy equipment River is doing FANTABULOUS. He still does daily treatments and will forever have to be on meds and be monitored, but he does not allow any of that to stop him. He is taller than everyone in the family at 5'10" and weighs almost 145lbs. The doctors swore to me he would never grow and that he would never be over 50lbs.... well LOOK AT HIM NOW!!! He is a thriving 7th grader at the top of his class, has been on the principles list every year and is reading at a 10th grade level, an active member of the JR. HONORS SOCIETY at his school, plays Varsity Basketball, plays the Saxophone and is the leader in the school Drum line. River has had a few set backs A couple years ago w numerous hospital visits...... he had brain surgery in Jan 2014, he had some blockage issues later and then GI issues after that. He was in the hospital 2 years ago for another bad lung infection, a sleep study to show he has minor sleep apnea, tonsillectomy and adenoids taken out, and had sinus surgery in August of this year. But prayers ever year are to be.... HOSPITAL STAY FREE!!!!! The sky is the limit for this lil fighter.... so please become a part of his future and DONATE NOW!!!!!
Cystic fibrosis is a devastating genetic disease that affects tens of thousands of children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation are making a huge difference in the lives of those with CF.
This year, RIVER'S RENEGADES are walking in the Great Strides walk BOYD PARK in ST PETERSBURG, FL on 11 MAY 2019. Please help our team meet our fundraising goal of $10,000 by sponsoring RIVER. Your generous gift will be used efficiently and effectively: approximately 90 cents of every dollar of revenue goes to support vital CF programs.
Making a donation is easy and secure. Just click the "Click to Donate" button on this page to make a donation that will support my team. Any amount you can donate is greatly appreciated. Your support will help fuel lifesaving CF programs.
To learn more about CF and the CF Foundation, visit www.cff.org.
Thank you for supporting Great Strides! Together, we can make a difference and “add tomorrows” to the lives of those with CF
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.