"Ronan was born on August 26th 2018 to Ricky and Kailyn Coler, a military family currently living in North Carolina. After a couple tough weeks trying to figure out parenthood, we excitedly headed to his two week check-up where we were shocked to find out he had lost six pounds from his birth weight. Our pediatrician came in and asked if we had ever heard of cystic fibrosis, and at that moment we knew our lives were about to change even more drastically. Trying to make sense of everything, we immediately set up an appointment with the closest CF center to get him on enzymes as soon as possible and discuss his mutations, F508del and 394delTT. We spent the next few days sitting through a hurricane contemplating what his life would be like, but our team assured us he will be a normal kid with just a different routine than most. Ronan is sitting comfortably above the 50th percentile in weight for length and his family is working hard to back to Tampa as soon as possible."
About Our Walk
For more than 30 years, Great Strides – the Cystic Fibrosis Foundation’s largest national fundraising event – has supported the Foundation’s mission to cure cystic fibrosis and raise awareness for this rare, genetic, life-shortening disease that makes it difficult to breathe and shortens lives.
Great Strides provides a fantastic opportunity for family, friends, students, and colleagues to come together and make a difference in the lives of people with CF. The event harnesses the power of people with a shared vision and encourages collaboration, team building, and leadership, as we collectively take steps to find a cure
Registration is free, but walkers are encouraged to raise funds. Your support will help accelerate innovative research and drug development, as well as advance care and advocacy. Nearly every CF drug was made possible by the Foundation and because of funds raised from Great Strides, people with CF are living longer, healthier lives and pursuing their dreams.
We are working every day to build on this incredible momentum, and we won’t stop until there is a cure for all people living with CF.
Sign up to walk in Great Strides today and join us as we take steps towards a cure.
The time is now. Together, we can cross the finish line.
CFF is going cashless! If making a donation the day of the walk we encourage you to bring your checkbooks or credit cards and avoid cash.