My Great Strides Story
It's that time of year again when we all join together in order to support me and all those affected with Cystic Fibrosis by walking for a cure in the Great Strides Walk. With the support of family and friends living with a chronic disease makes it a little easier. I truly feel the support and love you have all given me by showing up year after year to walk with my team Emma’s Angels. Whether it was sunny, rainy, chilly, or even having a hectic schedule; you made the time to help me fight Cystic Fibrosis.
On January 19th, I turned 15 years old. In so many ways I am a typical teenager, but in other ways so different too. What I have to do on a daily bases is quite different. My number one priority is staying healthy. In order to do this I have daily treatments which include airway clearance techniques and thinning of my mucous, plus oral medications.
Cystic Fibrosis (CF) is an inherited chronic disease that affects the lungs and the digestive system of about 30,000 children and adults in the United States. My team has been walking for a cure since May 2002. I like to advocate and fundraise for the Cystic Fibrosis Foundation (CFF) because it has helped improve the quality of life and mortality for those affected with CF. The CFF wouldn’t have been able to achieve this without your support.
Most recently, the Cystic Fibrosis Foundation assisted in launching Kalydeco a new oral medication for the treatment for Cystic Fibrosis. It was FDA approved for certain mutations. Kalydeco is the first drug available that gets to the underlying cause of CF. The only problem is it is only helping a small population, at this time. We need to keep walking and raising money until it works for all the those affected with CF. We need to continue walking for better treatments. I won’t stop walking until CF stands for Cure Found.
Please join my team on June 5, 2016 at Albertus Magnus High School in Rockland. If you can’t make it please donate.