Sunday, May 19th is the annual “Great Strides Walk” day for 2019! (Notice that the day is Sunday, not Saturday.) The Madison Surf Club is again the location for the event, and registration begins at 9:00 a.m. The actual walk starts at 10:00, and the entire event is finished by 12:30 p.m. We would love to see you there!
I am extremely happy to report that our nephew, Brent, and Kalli Swofford were married on November 10, 2018!! Our family could not have been happier for the two of them, nor more proud that Brent reached this extraordinary milestone. The wedding was held in Greenville, SC, and it was attended by nearly 200 guests. It so happened that our third grandchild, Isabelle Tiffany Gould, was born the day before, so I was not able to attend the wedding. But Don and our daughter, Laura, and her family were there to celebrate the occasion. (A marriage and a new granddaughter in one weekend made for a spectacular celebration for all of us!)
Shortly before the wedding, Brent and Kalli bought a small house in Spartanburg, SC, and now reside there. In the early fall, Brent began working for another company that does logistical scheduling solely for General Electric. He loves the work, and GE has already taken advantage of his skills, asking him temporarily to manage a site in Pensacola, FL, while it searches for a permanent employee at that location. It is a great opportunity for him to branch out, to learn new management skills, and to build a solid reputation in the field. Over this brief period, he and Kalli see one another on weekends and are excited to explore the Gulf shores of Florida.
Brent has had some minor health setbacks in the last year, but nothing that led to a hospital visit. He continues his healthy diet, exercise, and his daily breathing treatments. Having Kalli in his life has also contributed to his excellent wellbeing! He continues to take the drug, “Orkambi,” which has a huge positive effect on the quality of his life. The research and development of this drug and of other life-changing drugs for patients with Cystic Fibrosis are only possible because of your generous donations over the years.
Back in 1992 when Brent was born, it was a hopeful, but then improbable thought, that he would someday be married. Almost twenty-seven years later, those incredible medications have made this dream come true.
Still every day for Brent is a gift because there is still no cure for Cystic Fibrosis. We need that cure for Brent and for the many other children and young adults suffering from this disease. Here is how you can help:
Would you please make a donation toward the Great Strides event? To contribute by check, make it payable to: Cystic Fibrosis Foundation, or simply CFF, and send it to me.
From our family to yours, we thank you for your generous contributions, for your encouraging messages, and for your prayers! Love, Bev
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.