Our family began our journey with Cystic Fibrosis on July 5th, 2017 with the birth of our youngest daughter, Lucy Grace. When we learned Lucy would be born with CF we began researching, fundraising and advocating for our little girl. Lucy has been relatively healthy since her birth with just a few minor colds, but it takes a lot of work to ensure she stays that way. Lucy does approximately 2 hours of treatments a day, up to 4 hours a day when sick. She takes 21 enzyme pills as well as one of the world’s most disgusting vitamins, (seriously it smells retched and stains everything it touches!) Despite all of this, she continues to be the happiest baby we have ever seen. Cystic Fibrosis can be an unpredictable disease. Its symptoms can look very different depending on the mutations and person. CF is a progressive disease that causes Lucy's body to create a thick sticky mucus in her lungs and pancreas. Lucy does nebulized albuterol and chest therapy to prevent the mucus from sticking in her lungs. She takes pancreatic enzymes with all of her meals because mucus blocks the ducts of her pancreas. At this point in time CF has no cure, its symptoms can only be managed through medications and therapies. We are taking part in the Great Strides walk to help raise funds and awareness for Cystic Fibrosis. Lucy may have CF, but it certainly does not have her.
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.