As you probably know, our daughter Avery was diagnosed in August of 2014 with Cystic Fibrosis. We are proud to have supported this cause for the past few years at various events, but we are always excited to do so at the Great Strides CF Walk. We'd love if you'd consider supporting us in raising funds to fight CF in honor of our own fighter.
Please help us find a cure for this disease which wants to slowly steal life away from our sweet girl. Breath by breath, year by year.
CF can affect the body's lungs (and entire respiratory system), digestive system, sinuses, pancreas, liver, and more. Avery follows a daily regimen of enzymes before meals (to digest her food, which she can't do on her own), albuterol to open airways, special multivitamins that her body has trouble absorbing, salt that her body gets rid of too quickly, 30 minutes on her vest (which does her chest physiotherapy to try to keep her lungs from collecting too much mucus), and a nebulizer which disperses two different types of inhaled medications, the first being one that attacks the mucuous (this is a regular/daily treatment), the second being an inhaled antibiotic that she takes during lung infections (when "sick"). Today, in her "healthy" state, she spends about 45 minutes each day on treatments. We try to keep her as healthy as possible, because common "hospitalizations" for CF kiddos with certain types of infections or bacteria in their lungs require 7-14 day stays. Some children see the hospital multiple times a year.
The Cystic Fibrosis Foundation is making a REAL difference in the fight against CF. They are directly responsible for adding YEARS to the lives of people with CF. Every dollar raised has directly impacted the length and quality of life of those with CF whether through their discovery of drugs and therapies or simply their amazing support for families dealing with the craziness of CF. Please help us support their fight. Please help Avery breathe a little easier and add years to her life.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, we are helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.