If you are new here, thanks for checking us out. If not, welcome back to our 6th year of fundraising!
Payton has had a very busy and successful year. She started kindergarten in August and absolutely loves going to school! It was a rough first couple of days to get the groove of her getting her enzyme dosing correct and on time but our nurse at the school is pretty amazing. Thank goodness because it’s still hard for us to watch her walk through the doors every morning by herself. We have a little miss independent on our hands!
Payton still does her vest twice a day for 15 minutes and now has started using her nebulizer treatment on a nightly basis as a routine treatment. She has improved her numbers with her PFTs (pulmonary function tests) and is gaining weight and growing appropriately. She’s been super excited because she has lost 4 teeth so far and two more are loose!
Because of all of you and your love and support, research has been able to make leaps and bounds towards a cure. There is a medication that is a “triple therapy” currently being tested in age groups of 6-12. The trial for ages 12 and over went so well that they were able to trial the younger ages. This is super exciting because this triple therapy would help Payton with her being heterozygous for her mutations. Our pulmonologist is hoping we can start the treatment next year some time! If that doesn’t bring tears to your eyes I’m not quite sure what would. When we first found out that Payton had Cystic Fibrosis she was 3 weeks old and the average life span at that time was 35. Now we’re talking about a possible cure in just 6 years! I know there are more fundraising efforts out there and it can seem overwhelming at times. We just ask that you please take the time to read our story, keep Payton in your prayers, and if you by any chance have an extra $5 to donate we would love that as well. Thank you in advance for all of you and all the kindness you have shown Payton and our family. We wouldn’t be able to do this year after year if it weren’t for you all.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.