My niece, Betsy Sullivan, was diagnosed with cystic fibrosis before her second birthday. Today, in many ways, she is a normal nineteen-year-old girl: she goes to school and has friends. There are, however, some parts of her life that are not normal. She has to go in to the hospital once in a while, and her hospital stays sometimes last two weeks or more. Her immune system is not as strong as it should be, and so travel (sometimes, even simple trips by car) can become challenging. Betsy's parents would have enough challenges with raising her and her two sisters, but when you throw in all the health challenges, you can see that CF can take a toll.
I know about CF primarily because of Betsy, and I'm impressed with the progress that is being made into the treatment of this disease. Treatments are available today that were not available just a few years ago. We can't be satisfied until there is a cure, but we can be pleased with the progress.
I want to walk in this year's Great Strides Walk to help raise money for continued research into the disease. I want to do my part for Betsy and for everyone else who has to live with this disease, and I hope to see the day that a cure is discovered. Thank you for reading my story; please consider sponsoring me in the 2019 Great Strides Walk.