There are approximately 30,000 Americans living with cystic fibrosis. For us, it's personal. We hold our breath every 3 months when Dan has an appointment with his CF team at HUP. We hope the news is good, his PFT's are stable, his lungs are clear, he doesn't have to deal with a hospitalization...truth is, this has been a rough couple years for him. Actually as we update this note, we recently got the news that Dan has developed resistance to all but one antibiotic that he can use outpatient. This is scary. Fortunately, the CF Foundation is working diligently to develop new antibiotics to fight antibiotic resistant infections. Your participation in any way to this cause truly does make a difference!
Will you click on the "Join our Team" button? Or if you can't walk, consider donating to our team? By clicking you can make a donation, fundraise, and/or walk with us on Saturday April 27th at the Ocean City boardwalk, and help us make CF stand for Cure Found. Thank you for your support!
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.