Wow! I can’t believe it has been an entire year since we started our first year of fundraising! Last year I was blown away with how many friends and family, near and far, took the time not only to view Asher’s page and send prayers, but generously donate to this cause that is so very important to us!
For those that are new to this page or were not aware, Asher was born on July 1st, 2017. Six days later, I received a phone call stating that, what we thought to be a beautiful, healthy baby boy was actually not the case. We were told that his newborn screening and further testing revealed that Asher had received 2 genetic mutations, 1 each, from Kevin and I. These mutations further indicated that Asher has Cystic Fibrosis. This news absolutely crushed our world and broke my heart.
Many of you may not know what Cystic Fibrosis is and I don’t blame you for not knowing, because until that day I received that crushing phone call, I had no idea! In short, Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. Not only does Cystic Fibrosis affect the lungs, it can also affect the Pancreas and Liver.
Since birth, Asher has been doing pretty well and is mainly experiencing issues with his pancreas and digestion. We have a daily and vigilant routine that includes Pancreatic enzymes with every feeding (7 capsules per meal and 3 with snacks), a special vitamin that he takes, 2 additional medications that aid in the absorption of his pancreatic enzymes, an inhaler twice daily, and respiratory therapy that I perform on him twice daily. I thank God everyday that we haven’t had any hospital stays thus far.
Since last year, Asher has grown tremendously . The doctors say that weight and lung function go hand and hand, so we want our big boy to continue growing at this excellent rate!
There is no cure, as of yet, for Cystic Fibrosis which is why research is so important. Please help us in prolonging our sweet baby Asher's life by donating to Cystic Fibrosis research to find a cure, hopefully someday soon! We love and appreciate all of you!
Great Strides walk supporting Cystic Fibrosis Foundation is on May 4th in Memphis, TN. I know many of you won’t be able to make the walk, but any donation small or large is very much appreciated. And if you can’t donate or participate, we appreciate prayers!
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.