Alex's Page

Chattanooga 2018

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Fundraising Progress

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Raised: $1,900.00

Goal: $3,000.00

My Great Strides Story


This year marks the seventh time I am raising for the Cystic Fibrisis Foundation. It is an auspicious year, as it is also the 30th anniversary of Great Strides!

King is living a productive life full of the things 6 year old little boys dream of: board games, his dog, Spot, play dates, repeated games of Uno, jars of Nutella, superheroes, soccer balls, Minecraft, Taylor Swift;), dancing in the kitchen, lots of potty talk, cuddles with his sister, Emma Virginia, and KINDERGARTEN.

King is also living a productive life full of the things 6 year old little boys don't often dream of. However, he champions these things and we are so very proud! 46 pills a day, 3 inhaled medications, hours of respiratory therapy a day, changing his own feeding tube!!, nightly tube feedings hooked up to a machine, daily tube feedings at snack time, and the knowledge that he must do all these things to stay well. Talk about superheroes, right?!?

Continued support of the Cystic Fibrosis Foundation is vital to King living a life full of everyday dreams. We want to expedite the research and development that will, one day, allow King to breathe easier and stop the devastation to his lungs.

Please know that donations go straight to the heart of the matter. CFF has a strong record of investing raised dollars back into research which has created a robust drug development pipeline including drugs in these areas: anti-infective, anti-inflammatory, nutritional/GI, mucociliary clearance. Perhaps, most significant, are more recent breakthroughs in restoring CFTR function! These drugs literally go to the root cause of CF at the cellular level and correct the issue. A percentage of the CF population already benefits from drugs like this, but King's CF mutations (DF508 and W1282X) are harder to correct. However, King takes many of these other drugs on a daily basis, and they are literally sustaining his life by clearing his lungs and allowing him to digest and absorb nutrients.

We are hopeful that one of the drugs to restore CFTR function currently in the drug development pipeline will be available to King in the next 3 years! We dream of the day that we can sit a pill in his hand that will actually correct the mutations at a cellular level. Take a moment to dream with us. Imagine the wrinkles of his hand cradling the pill that will change his life. Believe with us that the weeks to follow will be full of deep breaths and fewer lung infections.

We are honored to work alongside so many CF families and continue the work of those that came before us. Please consider a gift to our families through Kenneth King's Believers.

Our team, Kenneth King's Believers, will take part in the 30th Anniversary of Great Strides in Chattanooga at Baylor School on Sunday, April 29. Our goal is to raise $30,000! Please join us for the tailgate if you are local. If you are not local, we hope that you will consider honoring Team KKB by walking in your area as so many have done in years past!


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